My name is Hassan Shaukat, and I was born in the 80’s – one of the greatest decades of all time! The music was great, the movies were iconic, and most importantly, Nintendo hit the streets! My parents are first generation immigrants who literally came from nothing and instilled great values, strong work ethic, and raised me into the caring human being I am today. I'm 34 years old, grew up and stayed in the DC area, went to UMD College Park (go Terps!), in the tech world and loving life! I have an absolutely amazing, stunning and loving wife (yup….I got the better end of the stick on this one), and a sweet, caring and tenacious little 3 year old baby girl. I have been blessed in so many areas of my life, but unfortunately, I do have a life threatening genetic disease called polycystic kidney disease (PKD) and is something I have been battling for some time now.
What is PKD?
Polycystic kidney disease (also called PKD) causes numerous cysts to grow in the kidneys. These cysts are filled with fluid. If too many cysts grow or if they get too big, the kidneys can become damaged. PKD cysts can slowly replace much of the kidneys, reducing kidney function and leading to kidney failure.
In the United States about 600,000 people have PKD. It is the fourth leading cause of kidney failure. It is found in all races and occurs equally in men and women. It causes about 5% of all kidney failure.
Me and PKD
I was diagnosed with this genetic disease about 5 years ago, and my kidney function is very low and will need a transplant soon. It's pretty crazy, your kidneys are amazing things - they regulate so many different aspects of your body and people can live a normal and fulfilling life with just one! With PKD, there isn't a cure or treatment except dialysis and transplantation.
I am working with my local transplant center, and I am on the deceased kidney donor list, but the average wait time for this is anywhere between 5-10 years. My kidneys won't last that long, and I'll end up going on dialysis which will heavily impact my quality of life.
Finding a live donor will not only save me from dialysis, but the quality of life post transplant with a living kidney is much better. A kidney lasts much longer from a live donor than a deceased donor. My goal is to be able to watch my daughter continue to grow and surprise me everyday, and hopefully one day be healthy to walk her down the aisle.
Please remember us in your prayers, and if you could please share our message - we would appreciate it more than words can describe.